DOME · eHealth · Medical Records Online

Organized a workshop in Oslo!

A week ago Åsa Cajander and I from Uppsala University, Isabella Scandurra from Örebro University and Tove Sørensen and Monika A Johansen from the Norwegian Centre for E-health Research, organized a workshop in Oslo as a part of the EHealth in Norway Future Health conference. The topic of the workshop was “Workshop: Patients’ digital access to their health record: A service for all?” In this blog post I will concentrate on a specific part of the workshop – the role play activity – and in a later post I will write about the conference as a whole.

In an earlier blog post I wrote about my first research contribution from a patient’s perspective and during the workshop in Oslo I made my second contribution as a patient. This time I took the patient role in a role play activity!

The workshop was divided into six main segments; General introduction, description of the eHealth service, discussion of who should have access, discussion about what type of documents should be provided, discussion (in smaller groups) about today’s technical, organizational, legal, cultural and practical limitations and discussion on future plans. Apart from taking part in general discussions prior to the workshop my responsibility was to prepare material for a role playing activity which should encourage discussions among the participants. The main idea with this activity was to pinpoint differences between regions within Sweden and Norway as well as differences between these countries, regarding access to information in patient accessible electronic health records. During the role playing I took the role as a patient (and I also used my own background during most of the activity), Åsa acted as representative for the Uppsala county council and Isabella acted as representative from other regions in Sweden. Tove and Monika were representatives from regions in Norway.

The first part of the role play started off the discussion about who should have access to the electronic health record. I began with describing the critical incident presented here, illustrating my need to see test results in my electronic health record. I began by asking Isabella and Åsa if I can access test results (and also other relevant health information) in Stockholm, where I live, Uppsala, where I work and in other regions in Sweden respectively. The discussion with Åsa and Isabella that followed showed that there are big differences between regions in Sweden regarding, most of all, the patient’s access to test results. When I directed the question to the Tove and Monika, about the situation in Norway, other workshop participants from Norway started giving their own answers! The same thing happened when I asked questions about access to historical data – how far back you can follow your medical history when using the electronic health record. We began by discussing the situation in Sweden and again big differences were found. After the focus shifted again to Norway the workshop participants were again very much involved in the discussion. The overall conclusion from this part of the role play, which focused mostly on my own needs as a patient, was pretty much that I should move to Uppsala!  🙂

The second, and last, part of the role play served as an introduction to the discussion of what types of documents should be provided. For this I introduced an imaginary sister with a bipolar disease – hence, a patient who wants to view psychiatry medical records. At least in Sweden there are only a handful of regions where patients can access those records and this was highlighted during the discussion with Åsa and Isabella. In Norway it was different – medical records from psychiatry can be viewed in half of the regions. Even this part of the role play engaged several of the other workshop participants. This time the conclusion seemed to be that my imaginary sister should move to Norway…   🙂

Overall, the role play activity was a success. It proved to be a good starting point for discussions and it could also be used as a frame of reference to relate back to when discussing. At several occasions workshop participants referred back to the scenarios covered during the role play. Our plan is to continue using this activity to promote discussions even in future workshops. As a matter of fact, Åsa and Isabella also used role playing as part of a presentation of the work performed within the DOME project, during the last conference day! I will write more about that later on.

Academic writing · DOME · Medical Records Online · Social media in higher education

Researching and teaching like never before!

This week has really been filled with both research and teaching activities related to eHealth, communication in engineering sciences and social media in higher education, just to mention a few areas. I will summarize this week’s activities in this blog post, just to give a broad overview of what I’m currently working on. The activities will be discussed more thoroughly in later posts. It may look below as though I never have any spare time. This week is, however, not very representative when it comes to work load – especially the teaching part takes up more time than usual.



As I wrote in an earlier blog post I’m one of the organizers behind a workshop with a focus on eHealth, and more specifically on differences between eHealth services between different regions. I will act as a patient, asking questions to the other organizers who in turn act as representatives from hospitals in different regions. This week I have been working on finding relevant questions to ask, which is not an easy task since these questions need to pinpoint differences in eHealth services not only between different Swedish county councils but also between Sweden and Norway! I will get back to this in another blog post when I know how the event turned out.

I have also been working on another eHealth related study, focusing on interviews with physicians about how their work environment and communication with patients have been affected by patient accessible medical health records. This will probably be the largest study I will lead during my time as a postdoc at Uppsala University. In this study I’m leading a group with both researchers from several Swedish universities and medical doctors. This week we were brainstorming interview questions – an activity we will work on continuously during the next couple of weeks. During this week I have also been working on the application we need to send to the ethical board later on. I will introduce this study a lot more thoroughly in an upcoming blog post and I will of course also post updates about the work we do.



In parallel with the research activities at Uppsala University I have also worked as a teacher at KTH (have a 30% leave of absence for this). I’m responsible for two groups of about 30 students in the course “Writing in the Engineering Profession”, where first year computer science students are taught how to write scientific reports. This week I have (and will) used 30% of my work time and some of my spare time to comment report drafts that the students have handed in. In a few weeks I will grade the students based on their final reports. I will write more about this course later on, since I want to clearly point out why I think this kind of course is so important to have as a mandatory course early on in education programs.



No week in academia is complete without some writing, right?  🙂  In case you are worried that there could be some blank spaces left in my calendar I can assure you there are not! During most of the spare time I have left this week I have been working on a paper manuscript, together with my colleagues Pernilla Josefsson from KTH and Renate Andersen from University of Oslo. The study concerns the use of social media in a higher education course. (Very) preliminary findings from the study were presented at the conference “Conference KTH Scholarship of Teaching and Learning 2015”. The manuscript (abstract) can be found among the proceedings posted here or on Research gate. I will, of course, write a lot more about the study after the journal article has been published.

eHealth · Medical Records Online

A new eHealth workshop is coming up!

A lot of things have happened since I started my work as a postdoc in Uppsala in September. Apart from starting off two large studies involving researchers from several universities in Sweden I have also been to two conferences and at NordiCHI I also contributed with a paper based on my own experiences as a patient.

Next up is yet another new challenge for me: for the first time I am co-organizing a workshop! The workshop is held 14/11 in Oslo, the day before the main EHiN-FH (EHealth in Norway Future Health) conference. This event will be special for me in many respects since I will not only work with organizing it but will also take part in a role playing activity (among the organizers) acting as a patient! I will of course write more about this after the event, but if you are a researcher within the eHealth area (especially a Swedish one, since we lack Swedish participants) you are also welcome to join and experience the workshop in person! You can read more about the workshop here and register (last day tomorrow, 7/11!) here if you are interested to join.

As I wrote in an earlier blog post I will try to add posts twice a week. I couldn’t really deliver this week, though, since I catched a terrible cold during NordiCHI which lasted for several days. Now I’m back in business again!  🙂