DOME · eHealth · Medical Records Online

Took part in yet another rewarding DOME consortium meeting!

HIBA_workshop2

During Tuesday and Wednesday this week we had this autumn’s DOME consortium meeting. This time we met at Uppsala University. As always, it is nice to meet the DOME colleagues from other universities in person after a longer period of meetings only through Skype. Those who were (physically) present during the first day were Åsa Cajander, Thomas Lind, Gunilla Myreteg and I from our HTO group at Uppsala University, Rose-Mharie Åhlfeldt from University of Skövde and Bridget Kane from Karlstad University (our newest member). Christiane Grünloh from KTH and Hanife Rexhepi from University of Skövde joined us through Skype during parts of the meeting. Åsa, Christiane and Hanife were not joining the second day, and the afternoon was spent with Isto Huvila from Uppsala University and some other members from his project HIBA (more about this below).

The first day started out with a follow-up discussion about the workshop performed at the last DOME consortium meeting in Skövde (see this blog post). Unfortunately, I missed that part since I had an overlap with a pedagogical course I’m taking. I could, however, join during a discussion about planned and ongoing activities. It was really inspiring to take part in that discussion – there are several studies up and running and there are so many things we want to do in the future! The ongoing studies that we discussed cover all of DOMEs workpackages which cover healthcare professionals, patients/relatives and IT development, respectively. One of the new areas discussed, brought up by Bridget, was tele-conference solutions in healthcare. We have both been studying that area in the past and a new project related to e.g. Skype meetings with physicians would be super interesting (but, then again, that goes for all the planned activities).

Other topics that we covered during the Tuesday were e.g. marketing strategies – how can we make sure that news about the consortium and our ongoing activities as well as results are spread to a wide audience. I think everyone who knows about DOME realizes that what we are doing is important. Anyhow, I will try to do my part by e.g. writing on this blog about the parts of DOME that I’m involved in and have a lot of knowledge about. Since the research is focused on different aspects of patient accessible electronic health records (and sometimes also other eHealth services) the research really concerns all of us, so I really encourage you to check out the DOME website. The consortium also has a Twitter handle, DOME_co.

After a rather long discussion about studies and other activities a few of us had dinner at a restaurant in central Uppsala. That was a very nice round-off of the first day.
The second day began with discussions about the overview article about the national patient survey which is now very close to being finalized. Then we continued talking about possible funding opportunities. Several DOME members are currently involved in research projects, but the consortium as such is not funded. Just before lunch, however, we may have found a very good option. There are also e.g. interesting EU funding opportunities coming up within the next couple of years.

After lunch we joined Isto and his colleagues Kristina Eriksson-Backa, Heidi Enwald and Noora Hirvonen – all from the HIBA (Taking Health Information Behaviour into Account: implications of a neglected element for successful implementation of consumer health technologies on older adults) project. It was interesting to meet that group and it turned out that we have quite a lot in common! You can read about the HIBA project here. Isto started out by introducing the HIBA project (see picture above), after which Rose-Mharie briefly introduced the DOME consortium. After this I presented results from the national patient survey, especially regarding differences between patients belonging to different disease groups. It turns out that there are several noticeable differences for several of the topics covered in the survey! I will of course get back to that in later blog posts.

After the presentations we then had a discussion about the similarities between the research performed in HIBA and by the DOME consortium, respectively and we also discussed an extensive literature review conducted within the HIBA project. After this session everyone seemed to feel that we should collaborate when possible.

These two days were very rewarding and I’m already looking forward to the next meeting. There will be two important DOME events next spring. Hanife will defend her thesis and Christiane will have her final seminar! Most probably, we will combine the next DOME consortium meetings with one of those events.

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