As I mentioned in yesterday’s blog post, Åsa Cajander and I had a presentation to carry out at the Medical Informatics Europe conference today. We got 11 minutes to present (which is a really short time if you want to describe a study and its results in a good way) and we were done after 11.03 minutes! I started with presenting myself, Åsa and the DOME consortium (the image above, taken by our colleague Hanife Rexhepi, is from that phase of the presentation) and then moved on to introduce Journalen, the patients accessible electronic health record system in Sweden, and the interview study with nurses. Åsa then continued by going through the four main themes that were found during the analysis (themes related to the effect of Journalen on the nurses’ work environment and their communication with patients); “Altered contacts”, “Increased workload”, “Creates uncertainty” and “Requires new knowledge”. You can read more about these themes and results related to them in the paper which you can find a direct DOI link to here.
I concluded by highlighting some important take-away messages from the study:
• The enhanced communication, which Journalen is perceived to give, is key to shared decision making!
• Both nurses and physicians see a risk with patients accessing unsigned notes and increased workload when patients request clarifications
• There is an identified need to educate both medical professionals and patients in how to use systems like Journalen
Usually, after you have presented something at a conference, you can relax for a bit but that wasn’t the case for Åsa and me. A few rooms away, our DOME colleague Maria Hägglund presented the study Timing It Right – Patients’ Online Access to Their Record Notes in Sweden in a session parallel to ours. Luckily, we managed to switch rooms in time for her presentation. I will write a separate post about that later.
Tomorrow, I will be presenting again – this time at Vitalis. The same goes for several other DOME colleague as well as representatives from Inera. After a nice dinner with several colleagues from Uppsala University and DOME, Hanife and I had a test run of our presentation, which will take the form of a role-play contrasting physicians’ and patients’ views on Journalen. That will be an interesting experience! We have two hours (13:00-15:00 in room A5) with several short presentations using different presentation modes as well as Mentimeter questions for the audience. If you are at Vitalis and are interested in Journalen and similar health record systems, I can really recommend that session.
Those who follow my blog have probably noticed that I have not posted anything since the end of March. This is mostly due to an episode of my autoimmune disease. I will write more about that in a later blog post, since my situation could actually have become a lot worse if it hadn’t been for me being able to access my medical records, and most importantly test results, online before the physician had a chance to contact me about changes.
Right now, I’m actually in Gothenburg, getting ready for my first presentation at the Medical Informatics Europe conference tomorrow! As I already wrote in an earlier blog post one of the paper that I co-authored, “Medical Records Online for Patients and Effects on the Work Environment of Nurses”, is scheduled for the last afternoon session. More specifically the session will take place 15:30-17:00. If you are at the conference you will be able to listen to the presentation, which Åsa Cajander and I will hold together, in room F5.
All MIE papers are published Open Access and you can find a post-print version of the paper here. If you follow this link you will find electronic versions of all papers presented during the conference.
I’m really looking forward to this combined MIE/Vitalis conference which I think will be very interesting and it’s also great that many colleagues are joining. Several colleagues from the HTO group at Uppsala University are here and I actually just got back from a dinner with Åsa Cajander, Diane Golay and Christiane Grünloh. Tomorrow several others will join both from the HTO group and the DOME consortium. Tomorrow, I will probably also be back with another post on how the presentation went as well as on our preparations for Wednesday’s DOME session at Vitalis!
Christiane Grünloh, who came from Germany to visit as a few weeks ago (see this blog post), came back to us this week. The main reason for her visit was once again to work with us in the large eHealth studies which I’m currently leading. As always, it was nice to have her with us and we got a lot of things done during these few days. First of all, we got several interviews done for this study. I will not discuss results here, since it is too early in the process and nothing has been analyzed, but after these days I’m sure that the study will give a lot of new insight. I also learned that Christiane is a very talented interviewer! It was obvious that she is a good active listener and that she can create a nice atmosphere during the interviews.
While Christiane was here, we also discussed about possibilities for writing CHI-papers and I think we came up with some really good ideas. I will try two write one related to mediated communication and haptic feedback and one, together with other researchers in DOME, related to eHealth. We also discussed ideas for submissions to other conferences. I will of course write more about this in future blog posts.
We also had progress when it came to accepted papers. A while ago I wrote a blog post about some papers being submitted to Interact. Yesterday we learned that one of them, a method paper about a workshop the DOME consortium hosted last autumn, had been conditionally accepted! I will write more about it when we have a final answer after resubmit. This also means that Christiane will get funding for visiting the conference in Mumbai, which in turn means that we (Åsa Cajander, Christiane and I) can submit a prepared workshop paper to the same conference (I will write another post about that if the WS contribution gets accepted)! The other paper we sent to Interact, about nurses’ views on patient accessible electronic health records, did not get accepted this time. But, we do have a plan for the future of that paper.
So, we had a lot of good progress this week and I hope we will have more of these weeks ahead of us!
This week, Christiane Grünloh (Ph.D. student from KTH and one of the researchers within the DOME consortium) is visiting Uppsala University to work mostly with the oncology interview study but also the national patient survey. Today, Gunilla Myreteg and Maria Hägglund, also from DOME, joined us. In the picture above we are looking at and discussing the current interview template (from left to right: me, Christiane, Gunilla and Maria). It was very nice to work together in this small group – normally we are spread out and communicate only via Skype.
Christiane, Maria and I started out by going through the interview questions once again, since we have not yet conducted any of the interviews with physicians at the oncology department. We did some updates and piloted the interview with Gunilla when she arrived. We are not sure, but hopefully we can do the first interview(s) tomorrow.
During the last hour we also discussed what was needed to be able to finalize an overview article about the national patient survey. It should not take long before we have a manuscript ready!
We ended the day with a nice dinner at an Italian restaurant in Uppsala, where more persons, mostly from the HTO group at Uppsala University, also joined. Even though we did not spend the entire day writing on the overview article for the national patient survey as we planned from the beginning, we still had a very productive day. Hope we will all meet again soon!
The ethics application I wrote about quite a while ago, regarding a new large observation/interview/survey study conducted by DOME researchers, has now finally been approved! This means that a new eHealth research adventure will now begin for the research team (presented here)! The following parts are planned for this study:
· Five full-day observations with nurses at different divisions of the Oncology department at Uppsala University hospital. The focus here is on use of technology in the daily activities
· Interviews with 20 physicians and 20 nurses at the Oncology department, focusing on how patients’ access to electronic health records has affected the work environment and means of communication.
· A short survey handed out to physicians and nurses, focusing on attitudes towards patient accessible electronic health records.
This will be one of the largest follow-up studies on the effects of patient accessible electronic health records in Sweden to date, so, needless to say, I’m very excited about being able to start the work now!!!
I will continue to write blog posts with updates about the ongoing work, but I will not give out any detailed results until they are published. Stay tuned! 🙂
In my last blog post I wrote about the application for ethical review, concerning a new large interview/survey/observation study with doctors and nurses at Akademiska Sjukhuset in Uppsala. The study, which will focus on how patient access to their medical records online has affected the work environment for physicians and nurses, will probably start during March. Since we are currently waiting for the results from the ethical review, this seems like a good time to introduce the team members behind the study.
The study is part of the DOME consortium, which collects researchers with a common interest in online electronic health records and their effects on patients and medical staff. The researchers come from different universities in Sweden. DISA (The effects of digitalization on the work environment for nurses) is a newly started project within the DOME consortium and the study I’m leading is the first study carried out within that project.
As many as 8 researchers and 2 medical doctors are behind this study;
- Jonas Moll (In case you don’t realize whose blog you are reading – this is me! 🙂. I’m postdoc in Human-Computer Interaction at the IT-department and I lead this study) [Researchgate]
- Åsa Cajander (An associate professor in Human-Computer Interaction at the IT-department, who is the main responsible for the study and also the leader of DISA and the DOME-consortium) [Blog] [Twitter] [Researchgate]
- Isto Huvila (A professor in Information Studies at the ALM department) [Blog] [Twitter] [Researchgate]
Uppsala University Hospital (Akademiska Sjukhuset):
- Gustaf Hedström (A medical doctor with a Ph.D. degree in Oncology, at the department of Immunology, Genetics and Pathology) [Researchgate]
- Ingrid Glimelius (A medical doctor with a Ph.D. degree in Oncology, at the department of Immunology, Genetics and Pathology) [Researchgate]
- Maria Hägglund (A researcher in Health Informatics with a Ph.D. degree in Medical Informatics, at the department of Learning, Informatics, Management and Ethics) [Blog] [Twitter] [Researchgate]
Royal Institute of Technology:
- Christiane Grünloh (A Ph.D. student in Human-Computer Interaction at the School of Computer Science and Communication) [Twitter] [Researchgate]
University of Skövde:
- Rose-Mharie Åhlfeldt (An associate professor in Computer Science at the IT-institution) [Twitter] [Researchgate]
- Hanife Rexhepi (A Ph.D. student in Information Technology at the IT-department) [Twitter][Researchgate]
- Gunilla Myreteg (An associate professor in Business Economics at the School of Business) [Researchgate]
The group introduced briefly above is highly multi-disciplinary, which I am sure will prove to be valuable for the study. Stay tuned for more! 🙂