DOME · eHealth · Medical Records Online · National patient survey

Got three papers and one workshop accepted to Medical Informatics Europe (MIE) 2018!

MIE_accept

Last week it was confirmed that three papers, where I’m one of the co-authors, were accepted to the Medical Informatics Europe (MIE) 2018 conference in Gothenburg! On top of this DOME researchers also got a workshop accepted to the same conference.

One of the papers was accepted as a “short communication”. This was a submission about a few results from the national patient survey (about the patient accessible electronic health record system Journalen), related to psychiatry patients and their perception of Journalen. The title of the paper is “Vulnerable, but not neglected? – Patient accessible psychiatry records” and it’s written by Gunilla Myreteg and me.

Another paper (which was accepted as a full paper) was related to waiting times before the patient can access new information in Journalen. Even in this paper we used a few results from the national patient survey. The title of that paper is “Timing it right – patients’ online access to their record notes in Sweden” and it’s written by Maria Hägglund, me, Rose-Mharie Åhlfeldt and Isabella Scandurra.

The last paper (also accepted as a full paper) was actually based on an old master’s thesis project, supervised by Åsa Cajander. This paper also related to Journalen, and more specifically to how nurses’ work environment is affected by the patient being able to access information in Journalen. The title of that paper is “Medical Records Online for Patients and Effects on the Work Environment of Nurses” and it’s written by Åsa, me, Sara Englund and Anastasia Hansman.

In a later blog post I’m going to introduce the workshop at Uppsala Health Summit 2018 that Åsa Cajander, Christiane Grünloh and I are organizing. The MIE workshop, with the title “Identifying the Need of Self-reported Data and Self-measurements for Diagnosis and Treatment of Cancer” is actually a narrowed-down version of the Uppsala Health Summit one. I will be the main organizer of this MIE workshop and Åsa, Christiane and Isabella Scandurra are co-organizers.

All in all, this means that the DOME consortium is well represented at MIE and as I have said earlier we will also organize something at Vitalis, which runs in parallel at the same venue. I will surely write more about these papers and the workshop as well as our activities at Vitalis later on during the spring. So, stay tuned! 🙂

conference · DOME · eHealth · Medical Records Online

Calling for papers to a special track on patient accessible electronic health records at CBMS 2018!

DOMEatCBMS

This year, I am organizing a special track at the Computer-Based Medical Systems (CBMS) annual conference, together with four colleagues from the DOME consortium:

This is our special track introduction:

In an effort to help patients to become more informed, cope with their diagnosis, understand their disease process and increase their participation in healthcare decision making, there is an international movement towards providing patients with Patient Accessible Electronic Health Records (PAEHRs). Through these systems patients can often access medical notes, lab results, and track referrals. Probably two of the most widely known examples of PAEHR systems are OpenNotes in USA and myUHN Patient Portal in Canada. Other countries that use PAEHRs as components of their health delivery systems are Estonia, United Kingdom and several Nordic countries. The implementation of PAEHRs has apparent implications to both patients and healthcare professionals. When the Swedish PAEHR system Journalen was implemented in Uppsala County Council in 2012, healthcare professionals expressed strong concerns regarding e.g. that patients would begin to contact healthcare providers by telephone to ask about words and phrases they do not understand, or that patients would become anxious on learning about serious diagnoses when reading record notes. Physicians saw the medical records as their work tool and not a system for communication with patients. Similar opinions have been raised by healthcare professionals in other countries where similar systems have been implemented. There is relatively few studies on PAEHRs from the patient’s perspective, but the findings so far indicate positive attitudes towards the perceived usefulness of PAEHRs.

The organisers of this special track are all members of the Swedish national DOME (Development of Online Medical records and E-health services) consortium – a consortium focusing on research on PAEHRs from a multi-disciplinary perspective (human-computer interaction, health informatics, security and privacy, health information behaviour, to name a few). This special track aims at bringing researchers as well as patients together to discuss the latest research concerning the implementation and development of PAEHRs as well as research concerning experiences with and attitudes towards PAEHRs from the patient and professional perspectives. Since implementations often differ between countries and sometimes even within one country (e.g. as in Sweden), contributions comparing implementation of PAEHRs in different countries and contexts are especially welcome. Patient-focused researchers are encouraged to contribute with research papers highlighting patient perspective, including research on PAEHRs with a functionality that allows patients to add information to their medical records online. Reports of new initiatives related to PAEHRs are also of special interest.

See the 4th track on this page for more information about topics of interest and see the call for papers here. If you do (or have done) research related to patient accessible electronic health records you are more than welcome to submit a paper to our special track! Please note that the deadline for abstracts is 5/2 and the deadline for full papers is 19/2.

communication · design · DOME · eHealth · EIT · EIT Health · Grant application · Human-Computer Interaction · Medical Records Online · National patient survey · Social media in higher education

Looking back at 2017!

Färjeläget

A new year has just begun and before I start blogging about current activities, I will take this opportunity to look back at some of the important things that happened last year. If you have been following this blog regularly, you have probably already read about the last summer’s adventures at the ACM SIGCHI/EIT Health summer school in a number of different posts so I will not get into any detail about that school here. If you want to read about what went on during this eHealth/mHealth design summer school you should read this post and all the posts it links to. The same goes for the very successful DOME session about patient accessible electronic health records at Vitalis, which I describe here.  As in all other of my meta-posts, I have chosen one of the nature pictures I took myself during the year.

Selected research activities

There was quite a lot of research going on last year. The research activities related to all of my focus areas eHealth, multimodal communication and social media in higher education courses. Naturally, most of my activities were connected to eHealth. Primarily, I continued working with the national patient survey on patient accessible electronic health records in Sweden (introduced here) and the interview/observation/survey study with physicians and nurses (introduced here). Last year’s work with the national patient survey resulted in four submitted manuscripts (to one journal and two conferences) and there is a lot more we can do with that study! It became especially interesting when we started comparing responses from different disease groups during the end of 2017. I will tell you more about these results later on when we have some publications. In the other study we conducted several interviews with physicians, about the effects of patients accessible electronic health records on their work environment, during the autumn. Most of the surveys have also been handed in. I will not discuss the results before they get published but I can tell you that both the qualitative and quantitative data gathered this far show that this study was very much needed! During the autumn I also started to, with my DOME consortium colleague Gunilla Myreteg, follow the implementation of psychiatry records online in Region Uppsala. I will write more about that in later posts.

I also started on another track related to eHealth – how we can make use of data from different sources for better diagnoses and treatment of cancer. This topic is also connected to big data and happens to be one of the themes covered in the 2018 version of Uppsala Health Summit. I am one of the organizers behind a workshop there and I also submitted a workshop proposal to a conference on the same theme. It remains to be seen if this will become one of my main research focuses in the future. It’s definitely and interesting and very important topic.

My work on multimodal mediated communication during 2017 focused primarily on revising a journal manuscript (presenting a study I was a part of during my last year at KTH) and submitting two posters to the Swedish Cognitive Science Society conference which was held in Uppsala in October. The accepted submissions are more thoroughly presented here and here.

Teaching

During autumn I was, together with Mohammad Obaid, responsible for a master level introductory course in Human-Computer Interaction. I really enjoyed that and I think the changes made to the course before it started really made a positive difference. One of the new parts we introduced to the course was a very appreciated creative prototyping session which I describe here. The students presented their final results in the middle of December and those results were very good. I describe the final presentation sessions here and the four finalists (which will compete for the winning team award) in these four blog posts:

  1. HCI course finalist 1: enhancing and simplifying the biking experience through augmented reality!
  2. HCI course finalist 2: utilizing haptic feedback for alerts and navigation cues!
  3. HCI course finalist 3: a solution for finding bikes to rent at your destination!
  4. HCI course finalist 4: a device presenting real-time and easily read navigational cues!

My research on the use of social media in higher education courses was also combined with my teaching in this course. The focus of that research is a teacher administrated Facebook-group which has been used as a complementary communication channel during the course. I explain the basic idea here.

Some other activities

Other activities worth bringing up here are my participation in the EIT Health Alumni Connect and the INNOVEIT events in Budapest in October. It was a great experience being there and my blog posts about Connect and INNOVEIT as well as those about the summer school also resulted in me being asked if I wanted to work with the EIT Health Alumni communication manager! Of course I accepted, but it remains to be seen exactly how that work should be carried out and what the tasks will be.

In November, I also took part in the first meeting as a representative in the eHealth council at the National Board of Health and Welfare in Sweden. I wrote about some of my experiences from that meeting here. I think many interesting collaborations can be found here!

In April I also submitted my first ever VR (the Swedish Research Council) application, which focused on support for collaboration between sighted and deafblind pupils in school. I wrote about that here. Unfortunately, we did not get a grant this time, but we got a “Very good” ranking on all criteria related to the content and feasibility so we will definitely move on with our ideas!

conference · DOME · eHealth · Medical Records Online · National patient survey · Vitalis

Co-authored three submissions to Medical Informatics Europe (MIE) 2018!

MIE_submit

Since the conference Medical Informatics Europe (MIE) is held at the same time and place as Vitalis this year several of the researchers within the DOME consortium as well as in our HTO group at Uppsala University, have submitted quite a few papers to MIE and seminar proposals to Vitalis. In an earlier blog post I wrote about the two proposals I wrote to Vitalis, which both focused on different aspects of patients accessible electronic health records.

Aside from writing proposals to Vitalis, I also co-authored three MIE papers together with several DOME colleagues. One of those papers focuses on how patient access to medical records online is affecting the work environment for nurses and I wrote it together with Åsa Cajander. It’s actually based on an earlier master’s thesis which Åsa supervised. This paper was done quite a while ago.

The two other papers were based partly on results from the national patient survey study which I am currently leading (we have been at the analyses/reporting stage for quite a while). One of those papers focuses on delay periods (before patients can access information in their electronic health record) for signed and unsigned notes and how these differ between county councils. Maria Hägglund was the main author and Rose-Mharie Åhlfeldt and Isabella Scandurra were the other co-authors.

The second paper which was based on the patient survey focuses on psychiatry records online – an area which we will focus on much more in the near future. I will explain why in a later blog post about upcoming activities. I wrote this paper together with Gunilla Myreteg, who was the main author.

Here you can find an introduction of all researchers working with the national patients survey. I should not give any more details right now about specific analysis results or focus themes in the national survey study since that could interfere with later blind review processes. But I can tell you that the results covered in the very short MIE submissions (five pages is the limit!) are just small parts of the material we have regarding a few of the focus areas we are covering in that study. We are just getting started!  🙂

The deadline for MIE-submissions was last Sunday, November 12. January 20 the authors will get the verdicts (accept/reject). I can hardly wait!

 

conference · DOME · eHealth · Medical Records Online · Vitalis

Recently submitted two seminar proposals to Vitalis

The deadline for submitting seminar proposals to Vitalis 2018 was last Friday, October 20. I almost missed that deadline, since I was so focused on the Medical Informatics Europe (MIE) 2018 conference which is held at the same time and place as Vitalis. I was, however, reminded a few hours before deadline and managed to submit two proposals (this is the first year I submit anything to Vitalis). 

Vitalis is a great place to be at for everyone interested in eHealth and progress/innovation in healthcare in general. It is mainly a Swedish event and gather researchers, business leaders, politicians, healthcare professionals and several other visitor categories. Last year I participated in Vitalis for the first time and I really enjoyed it! My favorite part was of course the 1,5 hours session organized by the DOME consortium. I especially enjoyed the team work both during our event itself and during the planning. My best conference experience ever, by far! The focus of that session was the state of art regarding patient accessible electronic health records in Sweden. You can read my blog post about all parts of that session here

Hopefully, at least one of my proposals will be accepted. Both of them focus on patient accessible electronic health records. One of my proposed sessions focuses on a recent study about how these online health records affect the work environment for nurses. The other proposal focuses on results from my large ongoing studies within the DOME consortium. There will be a lot of interesting material from those studies to discuss when we reach Vitalis! DOME usually draws a big audience at Vitalis, so hopefully at least the second proposal will be accepted. If it is, I hope that many DOME colleagues will join me so we can throw a similar kind of party as we did last time!  😉

Apart from submitting proposals to Vitalis I will also co-author three full papers, together with several DOME colleagues, to the MIE conference and probably submit a workshop proposal to MIE. I will write about those later on. If all goes well, there will be some busy days for the DOME researchers during the Vitalis/MIE conference period, April 24-26 2018!

DOME · eHealth · Medical Records Online

Took part in yet another rewarding DOME consortium meeting!

HIBA_workshop2

During Tuesday and Wednesday this week we had this autumn’s DOME consortium meeting. This time we met at Uppsala University. As always, it is nice to meet the DOME colleagues from other universities in person after a longer period of meetings only through Skype. Those who were (physically) present during the first day were Åsa Cajander, Thomas Lind, Gunilla Myreteg and I from our HTO group at Uppsala University, Rose-Mharie Åhlfeldt from University of Skövde and Bridget Kane from Karlstad University (our newest member). Christiane Grünloh from KTH and Hanife Rexhepi from University of Skövde joined us through Skype during parts of the meeting. Åsa, Christiane and Hanife were not joining the second day, and the afternoon was spent with Isto Huvila from Uppsala University and some other members from his project HIBA (more about this below).

The first day started out with a follow-up discussion about the workshop performed at the last DOME consortium meeting in Skövde (see this blog post). Unfortunately, I missed that part since I had an overlap with a pedagogical course I’m taking. I could, however, join during a discussion about planned and ongoing activities. It was really inspiring to take part in that discussion – there are several studies up and running and there are so many things we want to do in the future! The ongoing studies that we discussed cover all of DOMEs workpackages which cover healthcare professionals, patients/relatives and IT development, respectively. One of the new areas discussed, brought up by Bridget, was tele-conference solutions in healthcare. We have both been studying that area in the past and a new project related to e.g. Skype meetings with physicians would be super interesting (but, then again, that goes for all the planned activities).

Other topics that we covered during the Tuesday were e.g. marketing strategies – how can we make sure that news about the consortium and our ongoing activities as well as results are spread to a wide audience. I think everyone who knows about DOME realizes that what we are doing is important. Anyhow, I will try to do my part by e.g. writing on this blog about the parts of DOME that I’m involved in and have a lot of knowledge about. Since the research is focused on different aspects of patient accessible electronic health records (and sometimes also other eHealth services) the research really concerns all of us, so I really encourage you to check out the DOME website. The consortium also has a Twitter handle, DOME_co.

After a rather long discussion about studies and other activities a few of us had dinner at a restaurant in central Uppsala. That was a very nice round-off of the first day.
The second day began with discussions about the overview article about the national patient survey which is now very close to being finalized. Then we continued talking about possible funding opportunities. Several DOME members are currently involved in research projects, but the consortium as such is not funded. Just before lunch, however, we may have found a very good option. There are also e.g. interesting EU funding opportunities coming up within the next couple of years.

After lunch we joined Isto and his colleagues Kristina Eriksson-Backa, Heidi Enwald and Noora Hirvonen – all from the HIBA (Taking Health Information Behaviour into Account: implications of a neglected element for successful implementation of consumer health technologies on older adults) project. It was interesting to meet that group and it turned out that we have quite a lot in common! You can read about the HIBA project here. Isto started out by introducing the HIBA project (see picture above), after which Rose-Mharie briefly introduced the DOME consortium. After this I presented results from the national patient survey, especially regarding differences between patients belonging to different disease groups. It turns out that there are several noticeable differences for several of the topics covered in the survey! I will of course get back to that in later blog posts.

After the presentations we then had a discussion about the similarities between the research performed in HIBA and by the DOME consortium, respectively and we also discussed an extensive literature review conducted within the HIBA project. After this session everyone seemed to feel that we should collaborate when possible.

These two days were very rewarding and I’m already looking forward to the next meeting. There will be two important DOME events next spring. Hanife will defend her thesis and Christiane will have her final seminar! Most probably, we will combine the next DOME consortium meetings with one of those events.

DOME · eHealth · Haptics · Medical applications · Medical Records Online · National patient survey · Summer school

Today I celebrate my blog’s first anniversary!

Ren1

Exactly one year ago I wrote my very first blog post! You can read that short post here. From the beginning my intention was to write two posts a week, but for different reasons my average during this first year is 1.4/week. During this first year the blog has had 2782 views by 1466 visitors. During the first couple of months the number of views were under 100, but I’m glad to see that the numbers have kept increasing – the number of views in September was 491, and 53 views have been accumulated during the first days of October this year.

Since this is a special blog post, the picture I chose is not by any means related to my work. Instead, I chose one of the pictures I took while hiking in northern Sweden (Abisko) about two years ago – I just love the nature up there!

As a kind of celebration, I will here present a top 5 list with the five most read posts:

  1. My colleague, Thomas Lind, successfully defended his thesis today!

This is one of my latest posts, which I uploaded in the middle of September. Despite the short time frame this is, by far, the most read post! The post is about the defense resulting in my colleague, Thomas Lind, getting a Ph.D. degree.

  1. EHealth summer school in Dublin, day 5

Those who have followed my blog during the latest months know that I have been writing quite extensively about a summer school I attended – one week in Dublin and one week in Stockholm. I’m very happy to see that one of those posts is on this list, because it took quite a lot of time to write them. This particular post is also a kind of summary post which includes links to the other posts about the week in Dublin. The summer school was a nice experience in so many ways and I really encourage you to read those posts if you are interested in eHealth/mHealth design (the Stockholm posts, although not on the top 5 lists, can be found here).

  1. A very successful session about patient accessible electronic health records at Vitalis 2017!

This post is not only on the top 5 list regarding views, but it is, by far, the most shared post on social media. The post summarizes an 1.5 hours session hosted by the DOME consortium at Vitalis last spring. I really hope we will get the opportunity to do something similar at Vitalis 2018! Read this post if you want to know about the state of art regarding patient accessible electronic health records in Sweden.

  1. The team behind a new large patient survey on electronic health records in Sweden!

I’m also happy to see this one on the list – since this post represents one of the big studies I’m currently leading. This particular study is based on a large national survey focusing on patients’ experiences with and attitudes towards the patient accessible electronic health system Journalen. In this post I introduce all researchers that work with the study.

  1. Haptic feedback in medical applications

The fifth most read post belongs to the blog series on haptic feedback as an interaction modality, which I started last autumn. This particular one concerns how haptic feedback can be utilized in medical applications. In this post I also introduce my own work within this area, which I carried out as a Ph.D. student at KTH.

So, these were my five most read posts, and I’m glad to see that they relate to different areas. The only area not covered in this list is pedagogical development. This might change during the next year, however, since I will most probably get an extensive study on Twitter as a communication medium in higher education courses published and I will also write a series of posts about a basic course in human-computer interaction which I will be responsible for at Uppsala University (starting October 30).

I have really enjoyed the blogging activity and will definitely continue to update this blog regularly, so stay tuned for more!  🙂