New conference paper on psychiatric records online in four countries
During late autumn 2021 and spring 2022 I collaborated with colleagues from the NORDeHEALTH project in writing two conference papers to the Medical Informatics Europe 2022 conference. Both papers were based on a socio-technical analysis of patient accessible electronic health records (PAEHRs) that was performed within the scope of the work package “National socio-technical contexts and policies” that Isabella Scandurra and I are co-leading. Both papers were accepted and presented at the conference in May and this blog post concerns the one focusing on psychiatric records online. The title of the paper is “Patients’ Access to Their Psychiatric Records – A Comparison of Four Countries”.
In the paper we are doing a cross-country comparison between Sweden, Finland, Norway and Estonia (the countries that are represented in the NORDeHEALTH project), focusing on differences and similarities in what clinical information is shared in the PAEHR regarding psychiatric conditions. We found many similarities, but also some important differences regarding for example the type of notes shared in the different countries. Annika Bärkås, a doctoral student from Uppsala University focusing on patients’ access to mental health records, was the main author and the other co-authors were Maria Hägglund, Åsa Cajander, Hanife Rexhepi, Iiris Hörhammer, Charlotte Blease and Isabella Scandurra.
The paper was published Open Access (this is the case for all papers from this particular conference) and can be found here.
Here is the abstract:
Several Nordic and Baltic countries are forerunners in the digitalization of patient eHealth services and have since long implemented psychiatric records as parts of the eHealth services. There are country-specific differences in what clinical information is offered to patients concerning their online patient accessible psychiatric records. This study explores national differences in Sweden, Norway, Finland, and Estonia in patient access to their psychiatric records. Data was collected through a socio-technical data collection template developed during a workshop series and then analyzed in a cross-country comparison focusing on items related to psychiatry records online. The results show that psychiatric records online are offered to patients in all four countries, and provide the same functionality and similar psychiatry information. Overall, the conclusion is that experiences of various functionalities should be scrutinized to promote transparency of psychiatric records as part of the national eHealth services to increase equality of care and patient empowerment.