DISA · DOME · Medical Records Online · National patient survey

Workshop day with DOME researchers


This week, Christiane Grünloh (Ph.D. student from KTH and one of the researchers within the DOME consortium) is visiting Uppsala University to work mostly with the oncology interview study but also the national patient survey. Today, Gunilla Myreteg and Maria Hägglund, also from DOME, joined us. In the picture above we are looking at and discussing the current interview template (from left to right: me, Christiane, Gunilla and Maria). It was very nice to work together in this small group – normally we are spread out and communicate only via Skype.

Christiane, Maria and I started out by going through the interview questions once again, since we have not yet conducted any of the interviews with physicians at the oncology department. We did some updates and piloted the interview with Gunilla when she arrived. We are not sure, but hopefully we can do the first interview(s) tomorrow.

During the last hour we also discussed what was needed to be able to finalize an overview article about the national patient survey. It should not take long before we have a manuscript ready!

We ended the day with a nice dinner at an Italian restaurant in Uppsala, where more persons, mostly from the HTO group at Uppsala University, also joined. Even though we did not spend the entire day writing on the overview article for the national patient survey as we planned from the beginning, we still had a very productive day. Hope we will all meet again soon!


DOME · eHealth · Medical Records Online · National patient survey · Vitalis

A very successful session about patient accessible electronic health records at Vitalis 2017!


I recently got back home to Stockholm again, after three great days at the 2017 version of Vitalis (Senska mässan) in Gothenburg. As I wrote in this blog post, several researchers from the DOME consortium and representatives from Inera and SALAR (Swedish Association of Local Authorities and Regions) were presenting during a 1.5 hours session May 26. We are all very pleased with the outcome and I will try to summaize the main points below (all presentations were in Swedish).

Introduction of the speakers and DOME


The whole session was introduced by Isabella Scandurra, who gave a quick overview. As a part of this introduction every one of the 10 ten persons who should talk during the session, came up on stage and presented themselves shortly. After the introduction, Åsa Cajander presented the history behind the DOME consortium and Patient Accessible Electronic Health Records (PAEHR) in Sweden. The image above show the current partners; Uppsala University, University of Skövde, Örebro University, Karlstad University, Royal Institute of Technology and Karolinska Institutet.

Role play!!


After the introduction a role play was carried out between Isabella and Åsa (see picture above). Isabella played the physician (with the 1177.se scarf!) and Åsa the patient and the idea was to present an ideal scenario where Journalen (a PAEHR system in Sweden) was used as a focus in the communication during a patient visit. Unfortunately, Journalen is not used in that way today – it’s seldom mentioned during visits and some example comments from physicians, from earlier interview studies, showed that they were not enthusiastic. Nevertheless, this was a very good way of illustrating the intended use of Journalen, and comments from the audience show that this part of our session was very appreciated.

The national patient survey


Hanife Rexhepi and I were next in line! We presented a collection of results from the large national patient survey. Hanife started by introducing the rationale behind the survey and its basic building blocks, after which I described some demographic results (e.g. that most respondents were from Uppsala and Skåne, that most of them were highly educated and that women were in majority). I also discussed general attitudes, which are very positive as shown in the image above, importance of different information types and common reasons for using Journalen. Hanife then ended with some more results, e.g. stating that the respondents understand most of the contents in Journalen, and a summary.

Journalen for children


After Hanife’s and my performance it was time for Maria Pettersson from Inera and Martin Price from SALAR to get up on stage and talk about Journalen for children. As it is today, parents can access their child’s PAEHR until the child turns 13 and the child itself then gets automatic access to Journalen from the day he/she turns 16. There is currently a gap, 13-16, where no one gets automatic access. It is, however, possible for the child and/or a parent to apply for direct access. Maria’s introduction (illustrated in the image above) brought this up, as well as how security in that age group can be tackled. Martin then continued with results from studies performed with parents and children, highlighting key aspects regarding e.g. usage, risks, access by parents vs. children and understandability. Quite a few audio recordings with interesting quotes were played during this presentation.

Journalen is the key – for the one who is sick


The last presentation was held by Jenny Juremalm from Inera and focused on comments from patients who use Journalen (when logged in to Journalen, there is a possibility to contact Inera and comment on Journalen and how it is being used). In the picture above, there is a summary about why patients want to use Journalen. Most of the points coincide with results from the national patient survey. Access to test results was very high up on the list. It is good that “being in control” and “better communication with care” are also at the top on the list. The facts that all county councils have not yet introduced Journalen (at the end of 2017 everyone should have joined, though) and that different information is shown in different county councils were also brought up to discussion. Increasing the use and taking care in listening to experiences from patients and medical professionals were among the points we need to focus on for the future.

Sneak peek panel and mentometer


The last part consisted of a “sneak peek panel” lead by Rose-Mharie Åhlfeldt, where two of our Ph.D. students from the HTO group at Uppsala University, Ida Löscher and Diane Golay, presented the newly started DISA (The effects of digitalization on the work environment of nurses) project. Åsa presented some preliminary results from the Interact submission about interviews with nurses that I mentioned here and Isabella presented the newly started PACESS (patient-centred assessment of patients’ online access to electronic health records) project.

At the very end, the audience was given the possibility to submit questions to the panel through a mentometer solution. Most of those questions were directed to Maria and Jenny from Inera. In fact, the audience was invited to interact through mentometer after each presentation – a few questions, relevant to the respective presentations, were presented and everyone could see a live presentation of the results as they were pouring in! The mentometer activities were also lead by Rose-Mharie. In the image above the question “How many years will it take until Journalen is used for communication between care professionals and patients?”, and we can see that 5 years won in this case. Isabella, Åsa and Rose-Mharie, shown in the image, are also the three researchers forming the managing team of the DOME consortium.

Short sum up

We were all pleased with our session and the audience also gave very positive comments on several of the presentations! So, I guess it is safe to label our session a success. It was very fun to be a part of this and I especially liked the varying presentation modes (text, diagrams, audio recordings, role play…) and the mentometer interaction with the audience. In fact, we got quite a lot of information from the audience in this way and we may use it for a publication later on! I am very sorry the event is over and I look forward to next year’s version of Vitalis, which will also be held in parallel with the Medical Informatics Europe (MIE) conference in Gothenburg. We will most certainly be back with several submissions to MIE and presentations at Vitalis next year!

DOME · eHealth · Medical Records Online · National patient survey · Vitalis

DOME researchers presenting at Vitalis next week!


Next week on Wednesday DOME researchers will host a 1.5 hours session about patient accessible electronic health records (PAEHR) in Sweden, just before lunch at Vitalis! Many different topics will be covered such as;

  • The history behind the DOME consortium and PAEHR in Sweden (“Journalen”)
  • Results from studies with medical professionals
  • Results from the national patient survey
  • Medical records online for children
  • Opinions from users of Journalen
  • Preliminary results from ongoing studies

I have discussed our national patient survey in earlier blog posts and during the second DOME presentation slot Hanife Rexhepi and I will present some concrete results from that study! We will, among other things, present basic demographic data, usage behavior and attitudes towards different aspects of Journalen. Later on during the spring there will also be a journal manuscript submitted, but the presentation at Vitalis will be the first occasion where results from the study are presented in public!

Åsa Cajander (coordinator of the DOME consortium) and Isabella Scandurra will present some history and a few results from studies with medical professionals and Rose-Mharie Åhlfeldt will lead the “sneak peak” session where a few new projects within DOME and some preliminary results from ongoing studies are discussed.

Apart from researchers within DOME, a few people from Inera (the company behind Journalen) – Maria Pettersson and Jenny Juremalm – and Martin Price from Uppsala county council will present results on medical records online for children and opinions from users.

I think this will be a great opportunity for us to reach out with our results and also a great opportunity for others to learn about DOME and the status of and attitudes towards patient accessible electronic health records in Sweden. I hope that many will show up and listen to us!





DOME · eHealth · Grant application · Medical Records Online · National patient survey

Looking back at first part of 2017


Since we are now approaching Easter, I will take a look back at the quite busy first quarter of this year. I really don’t have a good summary picture, so I will go with a tawny owl (kattuggla) instead, which I photographed at my countryside last Easter (a couple has been occupying that hole for years).  🙂

Leading large research studies in eHealth

Quite a lot of my time has been devoted to working with (and leading) the two large eHealth studies I introduced here and here. At the end of January the ethical application for the observation/interview/survey study at Uppsala University hospital was sent in and a couple of weeks ago it was finally approved. I’m currently recruiting participants for the observation and interview activities, described here. In parallel I have been working, together with colleagues from several Swedish universities, on analyzing the results from the national patient survey and drafting a first publication about the study. We are still writing, but the current plan is to submit a journal manuscript before May is over.

Writing research grant applications

This is the first year that I have been working very actively with research grant applications and I must say I have really enjoyed it! For one of the applications, to the Swedish Research Council, I was the main applicant. I wrote most of the text and also assembled a group of researchers from four Swedish Universities who I thought would complement each other perfectly in carrying out the planned project. You can read more about this particular application here. I really learned a lot from this experience, so I definitely think I have gained something from this application process even if our proposed project is not funded. And if it is not – I will just assemble the team once again and give it another try!

The other application I have been working on is an EU grant application aiming at developing a kind of health coach to be used both in Sweden and Uganda – thus this application is within the eHealth area. The grant writing process was led by Meena Daivadanam from Uppsala University/Karolinska Institutet who is also the main applicant. Åsa Cajander and I will play key roles in the “technical component”, since we are the only IT people among the co-applicants. Apart from Sweden, researchers from Finland, Belgium, Uganda and Australia. The application was submitted two days ago – let’s see if we get lucky!  🙂


In the middle of March we had a traditional DOME consortium conference, this time in Skövde. I really enjoyed going there to meet all people that I work with in my studies in real life (normally we have regular Skype meetings, but that is not the same thing of course). It was also especially interesting to meet Bridget Kane again – the newest addition to the DOME consortium. We had referenced each other’s studies on multidisciplinary medical team meetings (this article is an example) quite a few times before we met at a conference at the end of last year! More can be read about the DOME conference in this blog post.

During these days I’m also preparing a presentation which Hanife Rexhepi and I will have at Vitalis, April 26. We are going to present preliminary findings from the national patient survey! I’m really looking forward to going to that conference and presenting with Hanife!

Apart from going to conferences I have also been working with conference papers. In a blog post from last year I wrote about a workshop where I participated as a patient. All participants eventually gathered again to write a paper about the workshop, but we recently got notified that the first attempt was unsuccessful. We will now try another conference, after taking the reviewer comments on the first version into account. I really like the fact that workshop participants actually forms a kind of research group and stay in contact, writing papers and so on! In parallel, I’m also writing on another conference paper about medical health records from the nurse’s perspective. And if that wasn’t enough I’m also writing on a full paper, about experiences from a recently held HCI course, for a pedagogical Conference.

Pedagogical courses

I have already written blog posts about a course on supervising oral presentations and a course on activating students, which I took during March. They required a lot of effort and time, but I really learned a lot from them. I’m currently also taking a pedagogical course on grading criteria, examination and feedback, which I will write more about after the last course day.


Apart from research, I have also done some teaching in a basic course in human-computer interaction. Specifically, I have been responsible for reading seminars. I also managed to squeeze in a guest lecture on design of advanced medical information systems and analysis Tools.

Ok, I think that was all. The first part of the spring term has been great and now I’m really looking forward to the second half – the part of spring where we will conduct our large eHealth study at Uppsala University hospital!!


Happy Easter!


DOME · eHealth · Medical Records Online · National patient survey

Presented at a seminar about our studies on electronic health records in Sweden


Earlier today, Åsa Cajander and I held the first lecture in a seminar series which is one part of the collaboration between our division (and especially the HTO group) at Uppsala University and the department “Elektronisk patientjournal” (EPJ) at Akademiska sjukhuset. EPJ’s primary task is to support care staff in planning and documenting the patients’ care process and this is one of the reasons why studies on electronic health records is of high interest to the group.


We used a presentation similar to the one we used during our visit to Södertörn University (see this blog post for a discussion about that presentation and the pod cast we were interviewed on). Åsa started by describing the DOME consortium and some key highlights from Journalen’s history. The main part of the presentation was devoted to a role-play activity, which we have tried several times now. As before, Åsa played the physician and I played the patient. Once again, that setup worked great and several questions from the audience (about 20 EPJ-members) were asked during that part of the seminar.


Apart from the introductory information, history walkthrough and the role-play (which was based on results from earlier studies with physicians and patients) I also presented some results from the national patient survey study I am leading and this part of the seminar also rendered a lot of questions and comments from the audience. The discussions about the survey study pretty much confirmed that we really have something interesting findings there! I ended the seminar by presenting our plans for the new observation/interview/survey study I am responsible for leading – very soon we will know a lot more about how patients’ access to their electronic health records will affect the work environment for physicians and nurses!

All in all, I am very pleased with the seminar and I especially appreciated the fact that the audience were engaged by asking questions and adding comments to the content Åsa and I presented. I hope we will have the opportunity to get back to EPJ later on and present key findings from the observation/interview/survey study (I really need to come up with a better name here!  🙂 ), which they were really interested in!

DOME · eHealth · Medical Records Online · National patient survey

The team behind a new large patient survey on electronic health records in Sweden!


In my last blog post I introduced the research team behind an interview/survey/observation study focusing on how patients’ access to medical health records online affects the work environment for physicians and nurses. This is probably the largest study I will be working with during my time as postdoc at Uppsala University. The study focuses entirely on medical staff, but what about the patients’ experiences and attitudes? It is of course very important to consider those.

This brings me to the other large study, which is also a part of the DOME consortium, I will lead during my postdoc period – the national patient survey! More than 2500 patients have answered questions spanning over a wide range of topics and we are now analyzing all the data. I have already mentioned the study briefly in earlier blog posts, but this time I will introduce the team, just as I did for the other study. There is a large overlap in that most of the involved researchers are part of both studies;


Uppsala University:

·       Jonas Moll (I’m postdoc in Human-Computer Interaction at the IT-department and I lead this study)  [Researchgate]

·       Åsa Cajander (An associate professor in Human-Computer Interaction at the IT-department, who is the main responsible for the study and also the leader of the DOME-consortium)  [Blog] [Twitter] [Researchgate]

·       Isto Huvila (A professor in Information Studies at the ALM department)  [Blog] [Twitter] [Researchgate]


Karolinska Institutet:

·       Maria Hägglund (A researcher in Health Informatics with a Ph.D. degree in Medical Informatics, at the department of Learning, Informatics, Management and Ethics)  [Blog] [Twitter] [Researchgate]


Royal Institute of Technology:

·       Christiane Grünloh (A Ph.D. student in Human-Computer Interaction at the School of Computer Science and Communication)  [Twitter] [Researchgate]


University of Skövde:

·       Rose-Mharie Åhlfeldt (An associate professor in Computer Science at the IT-institution)  [Twitter] [Researchgate]

·       Hanife Rexhepi (A Ph.D. student in Information Technology at the IT-department)  [Twitter] [Researchgate]


Örebro University:

·       Gunilla Myreteg (An associate professor in Business Economics at the School of Business)  [Researchgate]

·       Isabella Scandurra (An assistant professor in Health Informatics at the School of Business)  [Twitter] [Researchgate]

With this patient survey study and the other interview/survey/observation study we will cover both the medical staff’s and the patients’ perspective. I am really looking forward to see what will come out of these studies!