Since I am still very much on a planning stage regarding the research I will perform during my recently started assistant professorship at Örebro University, I will take the opportunity to write a few posts about the research I have performed and what is currently going on. I will start by discussing research within the eHealth domain.
What have I done related to eHealth?
Those who have followed this blog during the latest years already know about my research on patient accessible electronic health records (PAEHRs), which I conducted during my time as a postdoc at Uppsala University. You can read a short summary about my two major studies (a national patient survey and an interview/survey study with clinicians at Uppsala University Hospital), submitted grant applications and conference activities in this blog post.
In total, my research on eHealth has, up until today, resulted in the following two journal publications (links lead to the open access articles):
- Patients’ Experiences of Accessing Their Electronic Health Records: National Patient Survey in Sweden. Journal of Medical Internet Research (Authors: Jonas Moll, Hanife Rexhepi, Åsa Cajander, Christiane Grünloh, Isto Huvila, Maria Hägglund, Gunilla Myreteg, Isabella Scandurra and Rose-Mharie Åhlfeldt)
- On threats and violence for staff and patient accessible electronic health records. Cogent Psychology (Authors: Ulrika Sahlin Åkerstedt, Åsa Cajander, Jonas Moll and *Ture Åhlander*)
and the following seven conference proceedings (most of the links lead to open access publications):
- Age-related differences in seeking clarification to understand medical record information. ISIC 2018: The Information Behaviour Conference (Authors: Isto Huvila, Jonas Moll, Heidi Enwald, Noora Hirvonen, Rose-Mharie Åhlfeldt and Åsa Cajander)
- Differences in the experiences of reading medical records online: Elderly, Older and Younger Adults compared. Informaatiotutkimus (Authors: Isto Huvila, Kristina Eriksson-Backa, Jonas Moll, Gunilla Myreteg and Maria Hägglund)
- Medical Records Online for Patients and Effects on the Work Environment of Nurses. Medical Informatics Europe 2018 (Authors: Åsa Cajander, Jonas Moll, Sara Englund and Anastasia Hansman)
- Timing it right – patients’ online access to their record notes in Sweden. Medical Informatics Europe 2018 (Authors: Maria Hägglund, Jonas Moll, Rose-Mharie Åhlfeldt and Isabella Scandurra)
- Identifying the Need of Self-reported Data and Self-measurements for Diagnosis and Treatment of Cancer. Medical Informatics Europe 2018 (Authors: Jonas Moll, Åsa Cajander, Christiane Grünloh and Isabella Scandurra)
- Using Critical Incidents in Workshops to Inform eHealth Design. INTERACT 2017 (Authors: Christiane Grünloh, Jean D Hallewell Haslwanter, Bridget Kane, Eunji Lee, Thomas Lind, Jonas Moll, Hanife Rexhepi and Isabella Scandurra)
- Making a case for easily accessible electronic health records – A patient perspective on lack of availability of health information in critical situations. NordiCHI 2016 (Author: Jonas Moll)
- Using data for better cancer treatments – Uppsala Health Summit 2018 pre-conference report (Authors: Åsa Cajander, Christiane Grünloh and Jonas Moll)
- Using data for better cancer treatments – Uppsala Health Summit 2018 post-conference report (Authors: Åsa Cajander, Christiane Grünloh and Jonas Moll)
- Dags att ställa fler krassa frågor om cancervården – Swedish debate article published in Dagens samhälle, June 14, 2018. (follow link for author list)
To sum up, my research within this domain, up until today, has focused on PAEHRs and their effects for patients and healthcare professionals.
My ongoing research within the eHealth domain
I am currently involved in quite a few ongoing research activities related to eHealth, especially when it comes to pushing journal manuscripts through the peer-review process.
When it comes to data gathering and analysis, there is still a lot of work to do in the large interview/survey study at the Oncology department at Uppsala University Hospital that I mentioned before. For many different reasons we were not able to conduct all the 20 interviews with nurses that we had planned. Around 10 more interviews need to be performed. When it comes to the physicians, the data gathering is complete and we are working with the analysis. My hope is that we will be able to submit a first overview article about those interviews in late autumn 2019 or early spring 2020. Specific theme articles are also planned, but they require a more in-depth analysis. The articles based on this study will be very important for research on patient accessible electronic health records in Sweden, since this is the first large follow-up study in Sweden regarding long-term effects of PAEHR on the work environment of healthcare professionals.
When it comes to the national patient survey all data gathering is completed, but there are still some themes from the survey that we want to look into in more depth. These include information literacy, computer security and comparisons between different disease groups.
I’m currently working on some journal publications together with colleagues in the DOME consortium. One of these articles reports on findings from the survey on the effect of PAEHR on the work environment of healthcare professionals, distributed to physicians and nurses at the Oncology department at Uppsala University Hospital. I expect this article to be published quite soon (a minor revision is about to be submitted back to the journal), so there will be a publication and, of course, a press release coming up pretty soon. One journal manuscript focusing on sharing health records is currently in the first review round and two journal manuscripts based on the patient survey, focusing on cancer and psychiatry patients, respectively, can be submitted to journals quite soon.
Upcoming research on eHealth
As I said in the beginning of this post, I’m very much on the planning stage when it comes to future research. There are a few activities, however, that I’m sure I will be working with during the upcoming months (these will get their own blog posts later on):
- Currently, it seems that I will submit at least two conference articles to next year’s version of Medical Informatics Europe. The deadline for submissions is September 1st, but on the other hand there is a scope limit on five pages. One article will be about results from the interview/survey study with healthcare professionals and the other will focus on results from the patient survey.
- Quite soon, I will take the lead on a more theoretical journal article, focusing on the role of the PAEHR as a communication mediator in healthcare.
- The above-mentioned article is directly related to a research grant application which is currently being reviewed by the Swedish Research Council (VR) – if the application is accepted I will finally get the opportunity to lead my very own research project!
- There is also another grant application, related to psychiatry records online, which is currently being reviewed by the Swedish Research Council for Health, Working Life and Welfare. 2020 can be a very interesting year, indeed!