This is my fourth and last post about this year’s version of Uppsala Health Summit, with the theme Care for cancer. I wrote the first three parts during the summer and now when the post-conference report, with the conclusions from the summit, is published it’s time to wrap up the blog series. Here are the links to the first three posts:
- Uppsala Health Summit 2018, part 1: time to start discussing some tuff questions related to cancer care!
- Uppsala Health Summit 2018, part 2: the overall experience
- Uppsala Health Summit 2018, part 3: the workshop planning
My original intention was to write separate blog posts about the different perspectives covered during the summit, but the post conference report (which you can find here) already covers all important aspects.
As I wrote in the earlier blog posts, the two days at Uppsala Health Summit gave me the best overall conference experience I have ever had. Researchers, healthcare professionals, industry representatives, policy makers and patients gathered in Uppsala Castle to discuss various aspects of cancer care and how to push forward in the area. The global perspective was one of the most interesting and important perspectives covered during the summit, at least as I see it. There are very clear differences in e.g. access to high quality care and diagnoses, national infrastructures and survival rates between high-income countries and low-/middle- income countries. The first chapter of the post-conference report, linked above, highlights this as well as other important aspects covered during the summit. The PPT presentations from the plenary speakers as well as the workshops, many of which you can download here, also give a very good overview of the most important aspects covered during the summit. Videos from the plenary sessions will also be available soon.
As I wrote in earlier posts on this subject, Åsa Cajander, Christiane Grünloh and I organized one of the workshops during the second day of the summit: “Using Data for Better Cancer Treatments”. Overall, I think the workshop was a success. In the beginning of the workshop each participant chose a table, representing the role s(he) wanted to focus on during the workshop. The roles were: patient, physician, nurse and researcher. After the groups had been formed, three of the participants presented critical incidents related to the workshop theme. These presentations had been prepared by participants that were recruited by the organizers a few months before the summit. The critical incidents, which covered the physician’s, patient’s and researcher’s perspective respectively, were meant to give inspirations for the upcoming workshop discussions. During the rest of the time before lunch, as well as during the lunch break, the groups discussed barriers and enablers, with regards to using data for cancer treatments. Some of the identified barriers included lack of infrastructure, fragmented data in silos and unclear rules for consent and usage. Enablers that the participants in many groups found important were improved access to mobile phones and networks, improved data storage possibilities and artificial intelligence.
After the lunch break our workshop speaker, Bengt Sandblad from our HTO group at Uppsala University, presented the ideas behind the vision seminar technique – the technique that was used during the next part of the workshop. You can see his presentation slides here. In the vision seminar part of the workshop the groups derived future scenarios, taking into account the barriers and enablers for the role they were focusing on, describing the use of data for cancer treatments in year 2050. During the last 30 minutes the scenarios from each group were presented, by a group representative, in plenum. During these presentations, a professional sketcher, Maja Larsson, drew sketches of the scenarios in real time!
Aside from the scenarios, the workshop resulted in some action points highlighting what needs to be done to reach the visions. Some of these were implementation of standards for interoperability, infrastructure for secure and powerful data transfer, allowing patient contributions and acknowledging that patients own their data.
You find more action points, thorough descriptions of future scenarios as well as a sample of Maja’s sketches in the post-conference report. In that report, you can of course also read about conclusions from all other workshops. I really recommend that you read the report!
So, what’s next? Uppsala Health Summit is a yearly event, and next year’s focus will be Healthy Urban Childhoods. The work with next year’s summit has already began. A few months ago I took part in a brainstorming activity where key aspects were discussed. I’m not sure what role I will play in the next summit, but I really hope that I will once again get the opportunity to organize a workshop and hopefully also join the programme committee!