DOME · eHealth · Medical Records Online · National patient survey · Popular science

Another successful press release!


As I wrote in my last blog post, an article based on the national patient survey, Patients’ Experiences of Accessing Their Electronic Health Records: National Patient Survey in Sweden, was recently published in the Journal of Medical Internet Research. Once again, Åsa Cajander and I wrote a press release that was published a few days after the journal article was published open access. As I wrote in this blog post a press release can really have an impact when it comes to spreading research results to the general public.

As was the case the last time, our new press release was picked up by a number of different sources (once again, all articles about our study are in Swedish):

  • published the article Patienter positiva till att läsa sin journal på nätet. They picked up our earlier press release as well and they once again wrote a re-organized version of the original press release.
  • once again asked for a popular science summary of our study. That summary remains to be written.
  • published the article Patienter positiva till journalen via 1177 Vårdguiden. Inera coordinates and develops digital solutions for healthcare and many other publicly funded areas. They manage Journalen and many other eHealth solutions and they also helped us in distributing and collecting survey responses. Inera’s news about our study was widely spread especially on Twitter.
  • IT-Hälsa published the article Patienter positiva till journalen i 1177 Vårdguiden. IT-hälsa is an online journal which primarily targets everyone who work IT in healthcare. Their article is based on the one Inera wrote.
  • People have also contacted me by email asking about which other parts we will focus on in the patient survey (the recently published article is just the first in a long list of articles about that study) and if we also conduct studies with healthcare professionals.

So, once again it is safe to conclude that it could be a very good idea to publish press releases about research results. I also think it’s safe to conclude that the interest that has been shown highlights that our research is important for society.

DOME · eHealth · Medical Records Online · Vitalis

Two-hour DOME session about patient accessible electronic health records at Vitalis 2018 – WE ARE BACK!


In the last couple of posts I have written about papers that will be presented by DOME researchers at Medical Informatics Europe 2018 as well as a workshop we will host during the same conference. These conference contributions are presented here. Aside from these, seminar proposals were also submitted to Vitalis, which runs in parallel at the same venue. As it turns out, DOME will once again get the opportunity to host a major session at Vitalis!

In several earlier posts, I have written about last year’s DOME session at Vitalis, which according to everyone involved was a great success. Research on patient accessible electronic health records was discussed from many different angles, and the audience was also involved through a Mentimeter solution. A summary of that entire session, with some representative images from the different talks, can be found here.

I’m really looking forward to once again join colleagues in the DOME consortium, as well as representatives from Inera, to present the latest research on patient accessible electronic health records. We will, among other things, discuss regulatory frameworks, the children’s access perspective, international perspectives, findings from the large national patient survey as well as preliminary findings from the large interview/observation/survey study with physicians and nurses I’m currently leading at the Oncology department at Uppsala University Hospital (results from this study have never been presented before!). Once again, we will also use Mentimeter for audience involvement as well as different presentation methods like e.g. role plays.

You can find the specific plans (with links to more information about the different talks) for our two-hour DOME session here (mostly in Swedish). If you are at Vitalis on Wednesday, April 25, I hope you will join us!


DOME · eHealth · Medical Records Online · National patient survey · Vitalis

A very successful session about patient accessible electronic health records at Vitalis 2017!


I recently got back home to Stockholm again, after three great days at the 2017 version of Vitalis (Senska mässan) in Gothenburg. As I wrote in this blog post, several researchers from the DOME consortium and representatives from Inera and SALAR (Swedish Association of Local Authorities and Regions) were presenting during a 1.5 hours session May 26. We are all very pleased with the outcome and I will try to summaize the main points below (all presentations were in Swedish).

Introduction of the speakers and DOME


The whole session was introduced by Isabella Scandurra, who gave a quick overview. As a part of this introduction every one of the 10 ten persons who should talk during the session, came up on stage and presented themselves shortly. After the introduction, Åsa Cajander presented the history behind the DOME consortium and Patient Accessible Electronic Health Records (PAEHR) in Sweden. The image above show the current partners; Uppsala University, University of Skövde, Örebro University, Karlstad University, Royal Institute of Technology and Karolinska Institutet.

Role play!!


After the introduction a role play was carried out between Isabella and Åsa (see picture above). Isabella played the physician (with the scarf!) and Åsa the patient and the idea was to present an ideal scenario where Journalen (a PAEHR system in Sweden) was used as a focus in the communication during a patient visit. Unfortunately, Journalen is not used in that way today – it’s seldom mentioned during visits and some example comments from physicians, from earlier interview studies, showed that they were not enthusiastic. Nevertheless, this was a very good way of illustrating the intended use of Journalen, and comments from the audience show that this part of our session was very appreciated.

The national patient survey


Hanife Rexhepi and I were next in line! We presented a collection of results from the large national patient survey. Hanife started by introducing the rationale behind the survey and its basic building blocks, after which I described some demographic results (e.g. that most respondents were from Uppsala and Skåne, that most of them were highly educated and that women were in majority). I also discussed general attitudes, which are very positive as shown in the image above, importance of different information types and common reasons for using Journalen. Hanife then ended with some more results, e.g. stating that the respondents understand most of the contents in Journalen, and a summary.

Journalen for children


After Hanife’s and my performance it was time for Maria Pettersson from Inera and Martin Price from SALAR to get up on stage and talk about Journalen for children. As it is today, parents can access their child’s PAEHR until the child turns 13 and the child itself then gets automatic access to Journalen from the day he/she turns 16. There is currently a gap, 13-16, where no one gets automatic access. It is, however, possible for the child and/or a parent to apply for direct access. Maria’s introduction (illustrated in the image above) brought this up, as well as how security in that age group can be tackled. Martin then continued with results from studies performed with parents and children, highlighting key aspects regarding e.g. usage, risks, access by parents vs. children and understandability. Quite a few audio recordings with interesting quotes were played during this presentation.

Journalen is the key – for the one who is sick


The last presentation was held by Jenny Juremalm from Inera and focused on comments from patients who use Journalen (when logged in to Journalen, there is a possibility to contact Inera and comment on Journalen and how it is being used). In the picture above, there is a summary about why patients want to use Journalen. Most of the points coincide with results from the national patient survey. Access to test results was very high up on the list. It is good that “being in control” and “better communication with care” are also at the top on the list. The facts that all county councils have not yet introduced Journalen (at the end of 2017 everyone should have joined, though) and that different information is shown in different county councils were also brought up to discussion. Increasing the use and taking care in listening to experiences from patients and medical professionals were among the points we need to focus on for the future.

Sneak peek panel and mentometer


The last part consisted of a “sneak peek panel” lead by Rose-Mharie Åhlfeldt, where two of our Ph.D. students from the HTO group at Uppsala University, Ida Löscher and Diane Golay, presented the newly started DISA (The effects of digitalization on the work environment of nurses) project. Åsa presented some preliminary results from the Interact submission about interviews with nurses that I mentioned here and Isabella presented the newly started PACESS (patient-centred assessment of patients’ online access to electronic health records) project.

At the very end, the audience was given the possibility to submit questions to the panel through a mentometer solution. Most of those questions were directed to Maria and Jenny from Inera. In fact, the audience was invited to interact through mentometer after each presentation – a few questions, relevant to the respective presentations, were presented and everyone could see a live presentation of the results as they were pouring in! The mentometer activities were also lead by Rose-Mharie. In the image above the question “How many years will it take until Journalen is used for communication between care professionals and patients?”, and we can see that 5 years won in this case. Isabella, Åsa and Rose-Mharie, shown in the image, are also the three researchers forming the managing team of the DOME consortium.

Short sum up

We were all pleased with our session and the audience also gave very positive comments on several of the presentations! So, I guess it is safe to label our session a success. It was very fun to be a part of this and I especially liked the varying presentation modes (text, diagrams, audio recordings, role play…) and the mentometer interaction with the audience. In fact, we got quite a lot of information from the audience in this way and we may use it for a publication later on! I am very sorry the event is over and I look forward to next year’s version of Vitalis, which will also be held in parallel with the Medical Informatics Europe (MIE) conference in Gothenburg. We will most certainly be back with several submissions to MIE and presentations at Vitalis next year!