This year, I helped out with the overall planning of a two hour session, which researchers from the DOME consortium and representatives from Inera AB plan to have at the eHealth conference Vitalis later on during the spring. We have had these joint sessions at Vitalis, all focusing on different aspects of the patient accessible electronic health record system in Sweden (Journalen), for several years now and as always my Örebro University colleague Isabella Scandurra has been the driving force. This year’s session, which was planned in 30 min slots, was recently accepted for inclusion in the conference program. Vitalis is an annual eHealth event held in Gothenburg, Sweden.
The first part of the session is called “Hur använder en spetspatient Journalen?” [How does a lead patient use Journalen?]. This part will focus on how patients can use Journalen to manage their healthcare. Role-plays will be mixed with presentations here. I will participate in this part, as one of the patients, and I will share some of my own experiences of using Journalen. Other lead patient representatives will share some of their stories as well.
The next part is called “Vad klagar patienterna på? Vad berömmer de?” [What are the patients complaining about? What are they praising?]. Here we will discuss feedback on Journalen from patients as well as benefits and problems in relation to different disease groups.
The third part is called “Panel med vårdpersonal: Hur jobbar du med Journalen?” [Panel with healthcare professionals: How do you work with Journalen?]. This part of the session will focus on experiences and opinions that invited healthcare professionals have related to using Journalen in their work (e.g. during interaction with patients).
The last part is called “Panel med “Unga experter”: Hur ser du på ungas användning av Journalen?” [Panel with ”Young experts”: How do you view young people’s use of Journalen?]. In this part, a panel with representatives from a network of young patients will share their views of Journalen in a panel setting.
I’m really happy with the content in this year’s session and with the variation of activities performed on stage – a mix of role plays, presentations and panels. The session will be held 13-15 during the first conference day (Tuesday, May 5th). You can see the entire program here. In the program you can see a more thorough description of the session as well as who will be involved in which part of the session. I will get back to this in a later blog post when the plans for the session have been finalized. If you want to see an example of a DOME/Inera session from an earlier year, you can read this blog post from 2017.