conference · DOME · eHealth · Medical Records Online · National patient survey · Vitalis

Co-authored three submissions to Medical Informatics Europe (MIE) 2018!

MIE_submit

Since the conference Medical Informatics Europe (MIE) is held at the same time and place as Vitalis this year several of the researchers within the DOME consortium as well as in our HTO group at Uppsala University, have submitted quite a few papers to MIE and seminar proposals to Vitalis. In an earlier blog post I wrote about the two proposals I wrote to Vitalis, which both focused on different aspects of patients accessible electronic health records.

Aside from writing proposals to Vitalis, I also co-authored three MIE papers together with several DOME colleagues. One of those papers focuses on how patient access to medical records online is affecting the work environment for nurses and I wrote it together with Åsa Cajander. It’s actually based on an earlier master’s thesis which Åsa supervised. This paper was done quite a while ago.

The two other papers were based partly on results from the national patient survey study which I am currently leading (we have been at the analyses/reporting stage for quite a while). One of those papers focuses on delay periods (before patients can access information in their electronic health record) for signed and unsigned notes and how these differ between county councils. Maria Hägglund was the main author and Rose-Mharie Åhlfeldt and Isabella Scandurra were the other co-authors.

The second paper which was based on the patient survey focuses on psychiatry records online – an area which we will focus on much more in the near future. I will explain why in a later blog post about upcoming activities. I wrote this paper together with Gunilla Myreteg, who was the main author.

Here you can find an introduction of all researchers working with the national patients survey. I should not give any more details right now about specific analysis results or focus themes in the national survey study since that could interfere with later blind review processes. But I can tell you that the results covered in the very short MIE submissions (five pages is the limit!) are just small parts of the material we have regarding a few of the focus areas we are covering in that study. We are just getting started!  🙂

The deadline for MIE-submissions was last Sunday, November 12. January 20 the authors will get the verdicts (accept/reject). I can hardly wait!

 

conference · DOME · eHealth · Medical Records Online · Vitalis

Recently submitted two seminar proposals to Vitalis

The deadline for submitting seminar proposals to Vitalis 2018 was last Friday, October 20. I almost missed that deadline, since I was so focused on the Medical Informatics Europe (MIE) 2018 conference which is held at the same time and place as Vitalis. I was, however, reminded a few hours before deadline and managed to submit two proposals (this is the first year I submit anything to Vitalis). 

Vitalis is a great place to be at for everyone interested in eHealth and progress/innovation in healthcare in general. It is mainly a Swedish event and gather researchers, business leaders, politicians, healthcare professionals and several other visitor categories. Last year I participated in Vitalis for the first time and I really enjoyed it! My favorite part was of course the 1,5 hours session organized by the DOME consortium. I especially enjoyed the team work both during our event itself and during the planning. My best conference experience ever, by far! The focus of that session was the state of art regarding patient accessible electronic health records in Sweden. You can read my blog post about all parts of that session here

Hopefully, at least one of my proposals will be accepted. Both of them focus on patient accessible electronic health records. One of my proposed sessions focuses on a recent study about how these online health records affect the work environment for nurses. The other proposal focuses on results from my large ongoing studies within the DOME consortium. There will be a lot of interesting material from those studies to discuss when we reach Vitalis! DOME usually draws a big audience at Vitalis, so hopefully at least the second proposal will be accepted. If it is, I hope that many DOME colleagues will join me so we can throw a similar kind of party as we did last time!  😉

Apart from submitting proposals to Vitalis I will also co-author three full papers, together with several DOME colleagues, to the MIE conference and probably submit a workshop proposal to MIE. I will write about those later on. If all goes well, there will be some busy days for the DOME researchers during the Vitalis/MIE conference period, April 24-26 2018!

DOME · eHealth · Medical Records Online · National patient survey · Vitalis

A very successful session about patient accessible electronic health records at Vitalis 2017!

Samlingsbild

I recently got back home to Stockholm again, after three great days at the 2017 version of Vitalis (Senska mässan) in Gothenburg. As I wrote in this blog post, several researchers from the DOME consortium and representatives from Inera and SALAR (Swedish Association of Local Authorities and Regions) were presenting during a 1.5 hours session May 26. We are all very pleased with the outcome and I will try to summaize the main points below (all presentations were in Swedish).

Introduction of the speakers and DOME

DOMEpresentation

The whole session was introduced by Isabella Scandurra, who gave a quick overview. As a part of this introduction every one of the 10 ten persons who should talk during the session, came up on stage and presented themselves shortly. After the introduction, Åsa Cajander presented the history behind the DOME consortium and Patient Accessible Electronic Health Records (PAEHR) in Sweden. The image above show the current partners; Uppsala University, University of Skövde, Örebro University, Karlstad University, Royal Institute of Technology and Karolinska Institutet.

Role play!!

Role_play

After the introduction a role play was carried out between Isabella and Åsa (see picture above). Isabella played the physician (with the 1177.se scarf!) and Åsa the patient and the idea was to present an ideal scenario where Journalen (a PAEHR system in Sweden) was used as a focus in the communication during a patient visit. Unfortunately, Journalen is not used in that way today – it’s seldom mentioned during visits and some example comments from physicians, from earlier interview studies, showed that they were not enthusiastic. Nevertheless, this was a very good way of illustrating the intended use of Journalen, and comments from the audience show that this part of our session was very appreciated.

The national patient survey

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Hanife Rexhepi and I were next in line! We presented a collection of results from the large national patient survey. Hanife started by introducing the rationale behind the survey and its basic building blocks, after which I described some demographic results (e.g. that most respondents were from Uppsala and Skåne, that most of them were highly educated and that women were in majority). I also discussed general attitudes, which are very positive as shown in the image above, importance of different information types and common reasons for using Journalen. Hanife then ended with some more results, e.g. stating that the respondents understand most of the contents in Journalen, and a summary.

Journalen for children

Barn

After Hanife’s and my performance it was time for Maria Pettersson from Inera and Martin Price from SALAR to get up on stage and talk about Journalen for children. As it is today, parents can access their child’s PAEHR until the child turns 13 and the child itself then gets automatic access to Journalen from the day he/she turns 16. There is currently a gap, 13-16, where no one gets automatic access. It is, however, possible for the child and/or a parent to apply for direct access. Maria’s introduction (illustrated in the image above) brought this up, as well as how security in that age group can be tackled. Martin then continued with results from studies performed with parents and children, highlighting key aspects regarding e.g. usage, risks, access by parents vs. children and understandability. Quite a few audio recordings with interesting quotes were played during this presentation.

Journalen is the key – for the one who is sick

Jenny

The last presentation was held by Jenny Juremalm from Inera and focused on comments from patients who use Journalen (when logged in to Journalen, there is a possibility to contact Inera and comment on Journalen and how it is being used). In the picture above, there is a summary about why patients want to use Journalen. Most of the points coincide with results from the national patient survey. Access to test results was very high up on the list. It is good that “being in control” and “better communication with care” are also at the top on the list. The facts that all county councils have not yet introduced Journalen (at the end of 2017 everyone should have joined, though) and that different information is shown in different county councils were also brought up to discussion. Increasing the use and taking care in listening to experiences from patients and medical professionals were among the points we need to focus on for the future.

Sneak peek panel and mentometer

Mentometer

The last part consisted of a “sneak peek panel” lead by Rose-Mharie Åhlfeldt, where two of our Ph.D. students from the HTO group at Uppsala University, Ida Löscher and Diane Golay, presented the newly started DISA (The effects of digitalization on the work environment of nurses) project. Åsa presented some preliminary results from the Interact submission about interviews with nurses that I mentioned here and Isabella presented the newly started PACESS (patient-centred assessment of patients’ online access to electronic health records) project.

At the very end, the audience was given the possibility to submit questions to the panel through a mentometer solution. Most of those questions were directed to Maria and Jenny from Inera. In fact, the audience was invited to interact through mentometer after each presentation – a few questions, relevant to the respective presentations, were presented and everyone could see a live presentation of the results as they were pouring in! The mentometer activities were also lead by Rose-Mharie. In the image above the question “How many years will it take until Journalen is used for communication between care professionals and patients?”, and we can see that 5 years won in this case. Isabella, Åsa and Rose-Mharie, shown in the image, are also the three researchers forming the managing team of the DOME consortium.

Short sum up

We were all pleased with our session and the audience also gave very positive comments on several of the presentations! So, I guess it is safe to label our session a success. It was very fun to be a part of this and I especially liked the varying presentation modes (text, diagrams, audio recordings, role play…) and the mentometer interaction with the audience. In fact, we got quite a lot of information from the audience in this way and we may use it for a publication later on! I am very sorry the event is over and I look forward to next year’s version of Vitalis, which will also be held in parallel with the Medical Informatics Europe (MIE) conference in Gothenburg. We will most certainly be back with several submissions to MIE and presentations at Vitalis next year!

DOME · eHealth · Medical Records Online · National patient survey · Vitalis

DOME researchers presenting at Vitalis next week!

DOMEatVitalis

Next week on Wednesday DOME researchers will host a 1.5 hours session about patient accessible electronic health records (PAEHR) in Sweden, just before lunch at Vitalis! Many different topics will be covered such as;

  • The history behind the DOME consortium and PAEHR in Sweden (“Journalen”)
  • Results from studies with medical professionals
  • Results from the national patient survey
  • Medical records online for children
  • Opinions from users of Journalen
  • Preliminary results from ongoing studies

I have discussed our national patient survey in earlier blog posts and during the second DOME presentation slot Hanife Rexhepi and I will present some concrete results from that study! We will, among other things, present basic demographic data, usage behavior and attitudes towards different aspects of Journalen. Later on during the spring there will also be a journal manuscript submitted, but the presentation at Vitalis will be the first occasion where results from the study are presented in public!

Åsa Cajander (coordinator of the DOME consortium) and Isabella Scandurra will present some history and a few results from studies with medical professionals and Rose-Mharie Åhlfeldt will lead the “sneak peak” session where a few new projects within DOME and some preliminary results from ongoing studies are discussed.

Apart from researchers within DOME, a few people from Inera (the company behind Journalen) – Maria Pettersson and Jenny Juremalm – and Martin Price from Uppsala county council will present results on medical records online for children and opinions from users.

I think this will be a great opportunity for us to reach out with our results and also a great opportunity for others to learn about DOME and the status of and attitudes towards patient accessible electronic health records in Sweden. I hope that many will show up and listen to us!