conference · DISA · DOME · eHealth · Medical Records Online · Vitalis

Today’s presentation at Medical Informatics Europe was successful!

MIE_nurses_presentation

As I mentioned in yesterday’s blog post, Åsa Cajander and I had a presentation to carry out at the Medical Informatics Europe conference today. We got 11 minutes to present (which is a really short time if you want to describe a study and its results in a good way) and we were done after 11.03 minutes! I started with presenting myself, Åsa and the DOME consortium (the image above, taken by our colleague Hanife Rexhepi, is from that phase of the presentation) and then moved on to introduce Journalen, the patients accessible electronic health record system in Sweden, and the interview study with nurses. Åsa then continued by going through the four main themes that were found during the analysis (themes related to the effect of Journalen on the nurses’ work environment and their communication with patients); “Altered contacts”, “Increased workload”, “Creates uncertainty” and “Requires new knowledge”. You can read more about these themes and results related to them in the paper which you can find a direct DOI link to here.

I concluded by highlighting some important take-away messages from the study:
• The enhanced communication, which Journalen is perceived to give, is key to shared decision making!
• Both nurses and physicians see a risk with patients accessing unsigned notes and increased workload when patients request clarifications
• There is an identified need to educate both medical professionals and patients in how to use systems like Journalen

Usually, after you have presented something at a conference, you can relax for a bit but that wasn’t the case for Åsa and me. A few rooms away, our DOME colleague Maria Hägglund presented the study Timing It Right – Patients’ Online Access to Their Record Notes in Sweden in a session parallel to ours. Luckily, we managed to switch rooms in time for her presentation. I will write a separate post about that later.

Tomorrow, I will be presenting again – this time at Vitalis. The same goes for several other DOME colleague as well as representatives from Inera. After a nice dinner with several colleagues from Uppsala University and DOME, Hanife and I had a test run of our presentation, which will take the form of a role-play contrasting physicians’ and patients’ views on Journalen. That will be an interesting experience! We have two hours (13:00-15:00 in room A5) with several short presentations using different presentation modes as well as Mentimeter questions for the audience. If you are at Vitalis and are interested in Journalen and similar health record systems, I can really recommend that session.

conference · DISA · DOME · eHealth · Medical Records Online · Vitalis

Getting ready to present at Medical Informatics Europe!

MIE_nurses

Those who follow my blog have probably noticed that I have not posted anything since the end of March. This is mostly due to an episode of my autoimmune disease. I will write more about that in a later blog post, since my situation could actually have become a lot worse if it hadn’t been for me being able to access my medical records, and most importantly test results, online before the physician had a chance to contact me about changes.

Right now, I’m actually in Gothenburg, getting ready for my first presentation at the Medical Informatics Europe conference tomorrow! As I already wrote in an earlier blog post one of the paper that I co-authored, “Medical Records Online for Patients and Effects on the Work Environment of Nurses”, is scheduled for the last afternoon session. More specifically the session will take place 15:30-17:00. If you are at the conference you will be able to listen to the presentation, which Åsa Cajander and I will hold together, in room F5.

All MIE papers are published Open Access and you can find a post-print version of the paper here. If you follow this link you will find electronic versions of all papers presented during the conference.

I’m really looking forward to this combined MIE/Vitalis conference which I think will be very interesting and it’s also great that many colleagues are joining. Several colleagues from the HTO group at Uppsala University are here and I actually just got back from a dinner with Åsa Cajander, Diane Golay and Christiane Grünloh. Tomorrow several others will join both from the HTO group and the DOME consortium. Tomorrow, I will probably also be back with another post on how the presentation went as well as on our preparations for Wednesday’s DOME session at Vitalis!

 

conference · DOME · eHealth · Medical Records Online · Vitalis

Looking forward to a very busy conference week at the end of April!

MIEVitalis_presentations

One month from now, at the end of April, I will have some very busy days in Gothenburg at the Vitalis 2018 and Medical Informatics Europe (MIE) 2018 events. The same goes for several other colleagues within the DOME consortium. I have already written a few blog posts about some papers and a workshop accepted to MIE and a DOME session at Vitalis. A few days ago, the MIE conference programme was published online. You can find it here (for the moment, PDF-files for the different presentation types can be downloaded).

It turns out that I will be directly involved in activities during all three conference days! This has never happened to me before – in earlier conferences I have been an active participant in a presentation or workshop one day and a more passive participant the remaining days. So, this will definitely be a challenging first-time experience!

Everything starts with the presentation “Medical Records Online for Patients and Effects on the Work Environment of Nurses” which Åsa Cajander and I will have during the last session of the first day’s (April 24) afternoon (room F5). You can read about our paper in this post. I’m glad that I will start with this particular presentation since the other ones involve many more persons and a lot more coordination. The only thing that makes me sad about this particular conference session is that it runs in parallel with another session (room F2) where the paper “Timing it right – patients’ online access to their record notes in Sweden” is presented – the other MIE-paper I’m involved in (presented here). The presentations are, however, not exactly in parallel, so maybe Åsa and I will have time to sneak out and join Maria Hägglund when she presents the “timing paper”.

During the Wednesday, I don’t have any presentation at MIE, but as I wrote in this blog post I’m joining several other DOME colleagues in a Vitalis presentation during the afternoon that day. We had a great time during our session last year and I’m positive we will have a great time together again! This time we will work with professionals to e.g. get help regarding presentation formats and framing of key messages. Wow – I’m really looking forward to see what we will come up with this time for our 2-hour session (13-15 in room A5).

During the last conference day, April 26, we have the workshop “Identifying the Need of Self-reported Data and Self-measurements for Diagnosis and Treatment of Cancer” (10:30-12:00 in room R22). The workshop and the other organizers are presented here. This is the very first workshop I have been the main organizer of, and I’m really looking forward to the experience of carrying it out this day! The topic is very important and the workshop will also be a very good test run of the setup which we will use at the larger workshop at Uppsala Health Summit later on in June. It will certainly be a challenge to run the workshop, especially after the first two days of presentations.

Everything that is presented at MIE will be published with Open Access, so I will get back to this topic again when I have links to the papers. I will of course also write about my experiences from the different presentations and the workshop as well as the conference experience as a whole. But why wait for a post about the presentations – if you are at MIE you should of course drop by and experience them, as well as the workshop, on site! 🙂

 

DOME · eHealth · Medical Records Online · Vitalis

Two-hour DOME session about patient accessible electronic health records at Vitalis 2018 – WE ARE BACK!

DOMEatVitalis2018

In the last couple of posts I have written about papers that will be presented by DOME researchers at Medical Informatics Europe 2018 as well as a workshop we will host during the same conference. These conference contributions are presented here. Aside from these, seminar proposals were also submitted to Vitalis, which runs in parallel at the same venue. As it turns out, DOME will once again get the opportunity to host a major session at Vitalis!

In several earlier posts, I have written about last year’s DOME session at Vitalis, which according to everyone involved was a great success. Research on patient accessible electronic health records was discussed from many different angles, and the audience was also involved through a Mentimeter solution. A summary of that entire session, with some representative images from the different talks, can be found here.

I’m really looking forward to once again join colleagues in the DOME consortium, as well as representatives from Inera, to present the latest research on patient accessible electronic health records. We will, among other things, discuss regulatory frameworks, the children’s access perspective, international perspectives, findings from the large national patient survey as well as preliminary findings from the large interview/observation/survey study with physicians and nurses I’m currently leading at the Oncology department at Uppsala University Hospital (results from this study have never been presented before!). Once again, we will also use Mentimeter for audience involvement as well as different presentation methods like e.g. role plays.

You can find the specific plans (with links to more information about the different talks) for our two-hour DOME session here (mostly in Swedish). If you are at Vitalis on Wednesday, April 25, I hope you will join us!

 

conference · DOME · eHealth · Medical Records Online · National patient survey · Vitalis

Co-authored three submissions to Medical Informatics Europe (MIE) 2018!

MIE_submit

Since the conference Medical Informatics Europe (MIE) is held at the same time and place as Vitalis this year several of the researchers within the DOME consortium as well as in our HTO group at Uppsala University, have submitted quite a few papers to MIE and seminar proposals to Vitalis. In an earlier blog post I wrote about the two proposals I wrote to Vitalis, which both focused on different aspects of patients accessible electronic health records.

Aside from writing proposals to Vitalis, I also co-authored three MIE papers together with several DOME colleagues. One of those papers focuses on how patient access to medical records online is affecting the work environment for nurses and I wrote it together with Åsa Cajander. It’s actually based on an earlier master’s thesis which Åsa supervised. This paper was done quite a while ago.

The two other papers were based partly on results from the national patient survey study which I am currently leading (we have been at the analyses/reporting stage for quite a while). One of those papers focuses on delay periods (before patients can access information in their electronic health record) for signed and unsigned notes and how these differ between county councils. Maria Hägglund was the main author and Rose-Mharie Åhlfeldt and Isabella Scandurra were the other co-authors.

The second paper which was based on the patient survey focuses on psychiatry records online – an area which we will focus on much more in the near future. I will explain why in a later blog post about upcoming activities. I wrote this paper together with Gunilla Myreteg, who was the main author.

Here you can find an introduction of all researchers working with the national patients survey. I should not give any more details right now about specific analysis results or focus themes in the national survey study since that could interfere with later blind review processes. But I can tell you that the results covered in the very short MIE submissions (five pages is the limit!) are just small parts of the material we have regarding a few of the focus areas we are covering in that study. We are just getting started!  🙂

The deadline for MIE-submissions was last Sunday, November 12. January 20 the authors will get the verdicts (accept/reject). I can hardly wait!

 

conference · DOME · eHealth · Medical Records Online · Vitalis

Recently submitted two seminar proposals to Vitalis

The deadline for submitting seminar proposals to Vitalis 2018 was last Friday, October 20. I almost missed that deadline, since I was so focused on the Medical Informatics Europe (MIE) 2018 conference which is held at the same time and place as Vitalis. I was, however, reminded a few hours before deadline and managed to submit two proposals (this is the first year I submit anything to Vitalis). 

Vitalis is a great place to be at for everyone interested in eHealth and progress/innovation in healthcare in general. It is mainly a Swedish event and gather researchers, business leaders, politicians, healthcare professionals and several other visitor categories. Last year I participated in Vitalis for the first time and I really enjoyed it! My favorite part was of course the 1,5 hours session organized by the DOME consortium. I especially enjoyed the team work both during our event itself and during the planning. My best conference experience ever, by far! The focus of that session was the state of art regarding patient accessible electronic health records in Sweden. You can read my blog post about all parts of that session here

Hopefully, at least one of my proposals will be accepted. Both of them focus on patient accessible electronic health records. One of my proposed sessions focuses on a recent study about how these online health records affect the work environment for nurses. The other proposal focuses on results from my large ongoing studies within the DOME consortium. There will be a lot of interesting material from those studies to discuss when we reach Vitalis! DOME usually draws a big audience at Vitalis, so hopefully at least the second proposal will be accepted. If it is, I hope that many DOME colleagues will join me so we can throw a similar kind of party as we did last time!  😉

Apart from submitting proposals to Vitalis I will also co-author three full papers, together with several DOME colleagues, to the MIE conference and probably submit a workshop proposal to MIE. I will write about those later on. If all goes well, there will be some busy days for the DOME researchers during the Vitalis/MIE conference period, April 24-26 2018!

DOME · eHealth · Medical Records Online · National patient survey · Vitalis

A very successful session about patient accessible electronic health records at Vitalis 2017!

Samlingsbild

I recently got back home to Stockholm again, after three great days at the 2017 version of Vitalis (Senska mässan) in Gothenburg. As I wrote in this blog post, several researchers from the DOME consortium and representatives from Inera and SALAR (Swedish Association of Local Authorities and Regions) were presenting during a 1.5 hours session May 26. We are all very pleased with the outcome and I will try to summaize the main points below (all presentations were in Swedish).

Introduction of the speakers and DOME

DOMEpresentation

The whole session was introduced by Isabella Scandurra, who gave a quick overview. As a part of this introduction every one of the 10 ten persons who should talk during the session, came up on stage and presented themselves shortly. After the introduction, Åsa Cajander presented the history behind the DOME consortium and Patient Accessible Electronic Health Records (PAEHR) in Sweden. The image above show the current partners; Uppsala University, University of Skövde, Örebro University, Karlstad University, Royal Institute of Technology and Karolinska Institutet.

Role play!!

Role_play

After the introduction a role play was carried out between Isabella and Åsa (see picture above). Isabella played the physician (with the 1177.se scarf!) and Åsa the patient and the idea was to present an ideal scenario where Journalen (a PAEHR system in Sweden) was used as a focus in the communication during a patient visit. Unfortunately, Journalen is not used in that way today – it’s seldom mentioned during visits and some example comments from physicians, from earlier interview studies, showed that they were not enthusiastic. Nevertheless, this was a very good way of illustrating the intended use of Journalen, and comments from the audience show that this part of our session was very appreciated.

The national patient survey

Enkät2

Hanife Rexhepi and I were next in line! We presented a collection of results from the large national patient survey. Hanife started by introducing the rationale behind the survey and its basic building blocks, after which I described some demographic results (e.g. that most respondents were from Uppsala and Skåne, that most of them were highly educated and that women were in majority). I also discussed general attitudes, which are very positive as shown in the image above, importance of different information types and common reasons for using Journalen. Hanife then ended with some more results, e.g. stating that the respondents understand most of the contents in Journalen, and a summary.

Journalen for children

Barn

After Hanife’s and my performance it was time for Maria Pettersson from Inera and Martin Price from SALAR to get up on stage and talk about Journalen for children. As it is today, parents can access their child’s PAEHR until the child turns 13 and the child itself then gets automatic access to Journalen from the day he/she turns 16. There is currently a gap, 13-16, where no one gets automatic access. It is, however, possible for the child and/or a parent to apply for direct access. Maria’s introduction (illustrated in the image above) brought this up, as well as how security in that age group can be tackled. Martin then continued with results from studies performed with parents and children, highlighting key aspects regarding e.g. usage, risks, access by parents vs. children and understandability. Quite a few audio recordings with interesting quotes were played during this presentation.

Journalen is the key – for the one who is sick

Jenny

The last presentation was held by Jenny Juremalm from Inera and focused on comments from patients who use Journalen (when logged in to Journalen, there is a possibility to contact Inera and comment on Journalen and how it is being used). In the picture above, there is a summary about why patients want to use Journalen. Most of the points coincide with results from the national patient survey. Access to test results was very high up on the list. It is good that “being in control” and “better communication with care” are also at the top on the list. The facts that all county councils have not yet introduced Journalen (at the end of 2017 everyone should have joined, though) and that different information is shown in different county councils were also brought up to discussion. Increasing the use and taking care in listening to experiences from patients and medical professionals were among the points we need to focus on for the future.

Sneak peek panel and mentometer

Mentometer

The last part consisted of a “sneak peek panel” lead by Rose-Mharie Åhlfeldt, where two of our Ph.D. students from the HTO group at Uppsala University, Ida Löscher and Diane Golay, presented the newly started DISA (The effects of digitalization on the work environment of nurses) project. Åsa presented some preliminary results from the Interact submission about interviews with nurses that I mentioned here and Isabella presented the newly started PACESS (patient-centred assessment of patients’ online access to electronic health records) project.

At the very end, the audience was given the possibility to submit questions to the panel through a mentometer solution. Most of those questions were directed to Maria and Jenny from Inera. In fact, the audience was invited to interact through mentometer after each presentation – a few questions, relevant to the respective presentations, were presented and everyone could see a live presentation of the results as they were pouring in! The mentometer activities were also lead by Rose-Mharie. In the image above the question “How many years will it take until Journalen is used for communication between care professionals and patients?”, and we can see that 5 years won in this case. Isabella, Åsa and Rose-Mharie, shown in the image, are also the three researchers forming the managing team of the DOME consortium.

Short sum up

We were all pleased with our session and the audience also gave very positive comments on several of the presentations! So, I guess it is safe to label our session a success. It was very fun to be a part of this and I especially liked the varying presentation modes (text, diagrams, audio recordings, role play…) and the mentometer interaction with the audience. In fact, we got quite a lot of information from the audience in this way and we may use it for a publication later on! I am very sorry the event is over and I look forward to next year’s version of Vitalis, which will also be held in parallel with the Medical Informatics Europe (MIE) conference in Gothenburg. We will most certainly be back with several submissions to MIE and presentations at Vitalis next year!